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Kisah Nestapa Sulami, Idap Penyakit Langka Tubuhnya Kaku Bak Manekin

 

Sulami( 35) menderita penyakit sangat jarang yang menimbulkan badannya kelu bagaikan manekin. Diambil brilio. net dari Dailymail, Jumat( 20/ 1), pihak Unit Kesehatan Sragen mengatakan penyakit merupakan ankylosing spondylitis( AS). AS ialah keanehan genetik yang melanda tulang balik serta persendian. Sampai saat ini belum dikenal faktornya alhasil pihak kedokteran pula belum menciptakan obatnya. Obat- obatan yang terdapat dikala ini cuma sanggup menunda kemajuan penyakit serta belum dapat hingga menyembuhkan berakhir.


Sulami ialah masyarakat Desa Selorejo, RT 31, Dusun Mojokerto, Kedawung, Sragen, Jawa Tengah. Ia amat memercayakan neneknya, Suginem( 90) dalam kesehariannya. Sepanjang 10 tahun terakhir, Sulami tidak dapat bersandar ataupun menunduk. Tiap hari ia lebih banyak menghabiskan durasi di tempat tidur. Neneknya Suginem hendak membantunya bila mau bangun dari tempat tidur. Buat berjalan, Sulami wajib dibantu gayung buat menopang badannya.

Penyakit ini dikenal pula bisa mengakibatkan penyakit lain semacam kardiovaskular, radang mata( uveitis), patah tulang balik, peradangan dada, sampai penyakit ginjal. Nah, selanjutnya potret- potret situasi terkini Sulami yang diluncurkan Dailymail.


1. Badannya kelu semacam kediaman.

2. Corak kakinya jadi legam.

3. Ia wajib dibantu gayung buat berjalan.

4. Waginem merupakan wujud nenek yang adem merawatnya.



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